Sarcoidosis

Sarcoidosis is a multisystem immune system disorder most often affecting individuals between 20 and 40 years of age. There is a predilection to affect women more than men. The exact cause of sarcoidosis is not known, however infectious, environment, genetic and immunologic factors are likely to play a role.

Symptoms of sarcoidosis vary greatly depending on the body and organ system involved. Furthermore, they may come on acutely or develop over a number of years and be mild or severe. The abnormal immune system function in sarcoidosis causes the development of inflammatory masses or nodules called granulomas. Granulomas most commonly affect the lungs, however lymph nodes, skin, joints and eyes may be involved. In rare cases, the liver, bone marrow, spleen, heart and nervous system may be involved.

Typical symptoms include new onset fatigue, fevers, shortness of breath, cough, arthritis, skin rash, eye irregularity and swollen glands.

A thorough medical history and physical examination is important for identifying a diagnosis of sarcoidosis. Other laboratory studies and X-ray will likely be used to further confirm the diagnosis or rule out other similarly presenting conditions.

Although no cure has been identified, in most cases medications are available to effectively suppress disease activity and allow the individual to lead a normal healthy life.

For further information on sarcoidosis, please see a rheumatologist in consultation or visit one of the following resources.

Resources

Sarcoidosis Research Institute

3475 Central Avenue, Memphis, TN 38111

Tel: (901)766-6951

Fax: (901)774-7294

Email: paula@sarcoidosisresearch.org

Internet: http://www.sarcoidosisresearch.org

American Lung Association

61 Broadway, 6th Floor, New York, NY 10019

Tel: 2123158700

Fax: 2122655642

Tel: 8005864872

Internet:Â http://www.lungusa.org

 

NIH/National Eye Institute

Building 31 Rm 6A32, 31 Center Dr MSC 2510, Bethesda, MD 20892-2510

Tel: 3014965248

Fax: 3014021065

Email: 2020@nei.nih.gov

Internet:Â http://www.nei.nih.gov/

 

NIH/National Heart, Lung and Blood Institute Information Center

P.O. Box 30105, Bethesda, MD 20824-0105,

Tel: (301)592-8573

Fax: (301)251-1223

Email:Â nhlbiinfo@rover.nhlbi.nih.gov

 

NIH/National Institute of Arthritis and Musculoskeletal and Skin Diseases

1 AMS Circle, Bethesda, MD 20892-3675

Tel: (301)496-8188

Fax: (301)718-6366

Tel: (877)226-4267

TDD: (301)565-2966

Email: NAMSIC@mail.nih.gov

Internet:Â http://www.nih.gov/niams/

 

National Sarcoidosis Resource Center

P.O. Box 1593, Piscataway, NJ 08855-1593

Tel: (732)699-0733

Fax: (732)699-0882

Email: nsrc@microfone.net

Internet:Â http://www.nsrc-global.net

 

Sarcoid Networking Association

6424 151st Ave East, Sumner, WA 98390-2601

Tel: 2538267737

Fax: 2538916886

Email: sarcoidosis_network@prodigy.net

Internet: http://www.sarcoidosisnetwork.org

 

Sarcoidosis Network Foundation, Inc.

13337 East South Street, Suite 420, Cerritos, CA 90703

Tel: (714)739-1398

Fax: (714)739-1398

Sarcoidosis Online Sites: A Comprehensive Source for Sarcoidosis Information on the Internet

Email: webmaster@sarcoidosisonlinesites.com

Internet: http://www.sarcoidosisonlinesites.com

Sarcoidosis Center

6005 Park Ave, Suite 501, Memphis, TN 38119

Tel: 9017615877

Fax: 9017612280

Tel: 8777272643

Email: sarcoid@sarcoidcenter.com

Internet: http://www.sarcoidcenter.com

UveitisSupport-MEEI

Massachusetts Eye and Ear Infirmary

243 Charles St, Boston, MA 02114

Tel: (617)573-3546

Fax: (617)573-3181

Email: fostersf@comcast.net

Internet: http://www.uveitis.org

Foundation for Sarcoidosis Research

PO Box 146229, Chicago, IL 60614

Tel: (773)665-2400

Fax: (773)665-0805

Email: fsr@stopsarcoidosis.org

Internet: http://www.stopsarcoidosis.org/